Multiple myeloma and you

J&J withMe in your country

Multiple Myeloma and you

When someone is first diagnosed with multiple myeloma, it can often lead to feelings of anxiety, a sense of being overwhelmed, and even anger at the situation. Building knowledge can help you tackle the disease and deal with it every day. It’s the first step towards effective treatment.

The information on this website is intended to give you an overview of multiple myeloma and smouldering multiple myeloma and provide answers to some of the most commonly asked questions we hear from patients. Remember, though, that your haematologist should be the first person you talk to about more specific queries.

How you can use this website

Use the navigation panel above to jump to information that is most relevant for you. Alternatively, we have selected some of the most commonly searched for content below which you can click on via each icon.

Comprehensive booklets addressing some of the topics tackled in this website can also be found at the end of the concerned sections for you to download and keep.

This site is regularly updated with new resources, keep an eye out on the main page for new updates.

Key topics

About multiple myeloma

The information on this page is intended to give you an overview of multiple myeloma and provide answers to some of the most frequently asked questions we hear from people living with the condition.

Managing multiple myeloma

Click here to learn practical tips and tricks for helping to manage and live with your disease and its symptoms.

Treatments

Although there is not currently a cure for multiple myeloma, treatments are improving all the time. Click here to learn about the different treatments your doctor may discuss with you.

About smouldering multiple myeloma

The information on this page is intended to give you an overview of smouldering multiple myeloma and provide answers to some of the most frequently asked questions we hear from patients.

Carers

Caring for someone with multiple myeloma can be complex and demanding. This section provides helpful advice and guidence for family and friends who may be caring for a loved one.

Johnson & Johnson collaborations & initiatives

Johnson & Johnson has been active in oncology for over 30 years and we have a range of support materials, tools, and services to help you better live with your condition.

References

[1]

Mayo Clinic. Myelodysplastic syndromes: Symptoms & causes. Available at: https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/symptoms-causes/syc-20366977. Last accessed: September 2023

[2]

Cancer.org. What Are Myelodysplastic Syndromes? Available at: https://www.cancer.org/cancer/myelodysplastic-syndrome/about/what-is-mds.html Last accessed: September 2023.

[3]

Cancer.gov. Myelodysplastic Syndromes Treatment (PDQ^®)–Patient Version. Available at: https://www.cancer.gov/types/myeloproliferative/patient/myelodysplastic-treatment-pdq Last accessed: September 2023.

[4]

MDS Foundation. What is MDS ? Available at: https://www.mds-foundation.org/what-is-mds/ Last accessed: September 2023.

[5]

Mayo Clinic. Myelodysplastic syndromes: Diagnosis. Available at: https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/diagnosis-treatment/drc-20366980 Last accessed: September 2023.

[6]

Cancer.org. What Causes Myelodysplastic Syndromes? Available at: https://www.cancer.org/cancer/myelodysplastic-syndrome/causes-risks-prevention/what-causes.html Last accessed: September 2023.

[7]

NIH National Cancer Institute. Myelodysplastic Syndromes Treatment (PDQR) - Patient Version. Available at: https://www.cancer.gov/types/myeloproliferative/patient/myelodysplastic-treatment-pdq. Last accessed: September 2023.

[8]

Blood Cancer UK. Watch and wait. Available at: https://bloodcancer.org.uk/understanding-blood-cancer/watch-wait/ Last accessed: September 2023.