CLL homepage

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Chronic lymphocytic leukaemia (CLL) and you

Welcome to the CLL area of the J&J withMe platform, a section dedicated to supporting people living with the disease.

Receiving a diagnosis of CLL can come with a raft of different emotions, but by building up your knowledge about the disease, you can prepare yourself for what is to come. It’s the first step towards effectively managing your CLL.

Each person will experience the disease differently. Some will require urgent care, while others will experience requiring treatment much later, if at all, due to its slow development. Understanding CLL and the various treatment options that are available can help you make much more informed decisions during consultations, enabling you to help tailor your treatment to your personal needs, and overall, better prepare you to manage a life with CLL. Remember, your doctor should be the first person you talk to about more specific and in-depth queries.

Key topics

About CLL

Gain an overview of chronic lymphocytic leukaemia (CLL), what it is, getting diagnosed and the stages.

Symptoms

Information about the main signs of CLL and what to expect with disease progression.

Treatments

Learn more about the different treatments available to you.

Living with CLL

Discover practical tips for helping you manage and live with CLL and its symptoms.

Your healthcare team

Find out about the key people in your healthcare team, what to expect in consultations and key questions to ask.

Support and caregivers

Find links to local support networks, online forums, and additional information to help caregivers to provide the best support they can.

BTKi Treatment Patient Guide

Discover a helpful guide designed to support you in living well during your Bruton’s tyrosine kinase inhibitor (BTKi) treatment journey.

References

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Cancer Research UK. Mantle cell lymphoma. Available at: https://www.cancerresearchuk.org/about-cancer/non-hodgkin-lymphoma/types/mantle-cell Last accessed: December 2024.
NHS UK. Non-Hodgkin lymphoma. Available at: https://www.nhs.uk/conditions/non-hodgkin-lymphoma/ Last accessed: December 2024.
Lymphoma Action. Lymphoma and the immune system. Available at: https://lymphoma-action.org.uk/about-lymphoma-what-lymphoma-immune-system/lymphoma-and-immune-system Last accessed: December 2024.
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Lymphoma News Today. Low Grade Lymphoma: What You Need To Know. Available at: https://lymphomanewstoday.com/low-grade-lymphoma/ Last accessed: December 2024.
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Cancer.org. Non-Hodgkin Lymphoma Risk Factors. Available at: https://www.cancer.org/cancer/non-hodgkin-lymphoma/causes-risks-prevention/risk-factors.html Last accessed: December 2024.
Lymphoma Action. Active monitoring (watch and wait). Available at: https://lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/active-monitoring-watch-and-wait Last accessed: December 2024.
Cancer Research UK. Available at: https://www.cancerresearchuk.org/about-cancer/non-hodgkin-lymphoma/living-with/coping Last accessed: December 2024.
Lymphoma Action.The emotional impact of living with lymphoma. Available at: https://lymphoma-action.org.uk/about-lymphoma-living-and-beyond-lymphoma/emotional-impact-living-lymphoma Last accessed: December 2024.
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