CLL support and caregivers

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Support and caregivers

Caring for a loved one can be rewarding but it can also bring its own set of challenges and emotions. The person that you would usually rely on for emotional support may be the person who has been diagnosed, and you feel you cannot go to them. As a carer, it is important to know that you are not alone and that the feelings you have are shared by many others in a similar situation. Finding your own support network is just as important for you as for the person you are caring for. Speak with your doctor or cancer care practitioners for advice on local support groups near you.

This website is developed exclusively by a Johnson & Johnson company. Please note that the patient advocacy groups and external sources listed below are an additional and independent source of information you might find useful. These groups and sources were not involved in the creation of this website and do not endorse its content in any way.


Patient support groups

The European LeukaemiaNet (ELN)

The European Leukaemia Network is a non-profit organisation dedicated to improving the care of people with leukaemia across Europe.

Leukaemia Care

The Leukaemia Care online forum is a place where people can ask questions anonymously or join in discussions with other people in a similar situation.

For guidance on how you can best help, and important information on how to take care of yourself, download the ‘Guidance for carers’ booklet.

References

NHS. Treatment: chronic lymphocytic leukaemia. Available at: https://www.nhs.uk/conditions/chronic-lymphocytic-leukaemia/treatment/. Last accessed: February 2025.
Leukemia and Lymphoma Society. Anxiety and Depression. Available at: https://www.lls.org/treatment/managing-side-effects/anxiety-and-depression. Last accessed: February 2025.
World Health Organization: Europe. Food Based Dietary Guidelines in the WHO European Region. Available at: https://iris.who.int/handle/10665/107490. Last accessed: February 2025.
World Health Organization: Europe. Alcohol in the European Union: Consumption, harm and policy approaches. Available at: https://iris.who.int/handle/10665/107301 Last accessed: February 2025.
NHS. The risks of drinking too much. Available at: https://www.nhs.uk/live-well/alcohol-support/the-risks-of-drinking-too-much/ Last accessed: February 2025.
NHS. Tips for a lower salt diet. Available at: https://www.nhs.uk/live-well/eat-well/tips-for-a-lower-salt-diet/ Last accessed: February 2025.
American Cancer Society. Physical activity and the person with cancer. Available at: https://www.cancer.org/treatment/survivorship-during-and-after-treatment/be-healthy-after-treatment/physical-activity-and-the-cancer-patient.html Last accessed: February 2025.
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