Chronic Lymphocytic Leukeamia (CLL)

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Support and caregivers

Caring for a loved one can be rewarding but it can also bring its own set of challenges and emotions. The person that you would usually rely on for emotional support may be the person who has been diagnosed, and you feel you cannot go to them. As a carer, it is important to know that you are not alone and that the feelings you have are shared by many others in a similar situation. Finding your own support network is just as important for you as for the person you are caring for. Speak with your doctor or cancer care practitioners for advice on local support groups near you.

This website is developed exclusively by a Johnson & Johnson company. Please note that the patient advocacy groups and external sources listed below are an additional and independent source of information you might find useful. These groups and sources were not involved in the creation of this website and do not endorse its content in any way.

Patient support groups

The European LeukaemiaNet (ELN)

The European Leukaemia Network is a non-profit organisation dedicated to improving the care of people with leukaemia across Europe.

Leukaemia Care

The Leukaemia Care online forum is a place where people can ask questions anonymously or join in discussions with other people in a similar situation.

For guidance on how you can best help, and important information on how to take care of yourself, download the ‘Guidance for carers’ booklet.

References

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Macmillan. Lymphoma and the lymphatic system. Available at: Last accessed: December 2024. https://www.macmillan.org.uk/cancer-information-and-support/lymphoma/lymphoma-and-the-lymphatic-system

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Cancer Research UK. Mantle cell lymphoma. Available at: https://www.cancerresearchuk.org/about-cancer/non-hodgkin-lymphoma/types/mantle-cell Last accessed: December 2024.

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NHS UK. Non-Hodgkin lymphoma. Available at: https://www.nhs.uk/conditions/non-hodgkin-lymphoma/ Last accessed: December 2024.

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Lymphoma Action. Lymphoma and the immune system. Available at: https://lymphoma-action.org.uk/about-lymphoma-what-lymphoma-immune-system/lymphoma-and-immune-system Last accessed: December 2024.

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Lymphoma Action. Mantle cell lymphoma. Available at: https://lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/mantle-cell-lymphoma. Last accessed: December 2024.

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Cancer.org. Lymph Nodes and Cancer. Available at: https://www.cancer.org/cancer/cancer-basics/lymph-nodes-and-cancer.html#:~:text=Lymph%20nodes%20and%20what%20they,in%20through%20the%20lymph%20fluid. Last accessed: December 2024.

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Leukemia and Lymphoma Society. Mantle Cell Lymphoma Facts. Available at: https://www.lls.org/sites/default/files/file_assets/mantlecelllymphoma.pdf. Last accessed: December 2024.

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NHS UK. Lumps. Available at: https://www.nhs.uk/conditions/lumps/ Last accessed: December 2024.

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Macmillan. Mantle cell lymphoma. Available at: https://www.macmillan.org.uk/cancer-information-and-support/lymphoma/mantle-cell Last accessed: December 2024.

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Lymphoma News Today. Low Grade Lymphoma: What You Need To Know. Available at: https://lymphomanewstoday.com/low-grade-lymphoma/ Last accessed: December 2024.

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Ladha, A., Zhao, J., Epner, E.M. et al. Mantle cell lymphoma and its management: where are we now?. Exp Hematol Oncol 8, 2 (2019).

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Cancer.org. Non-Hodgkin Lymphoma Risk Factors. Available at: https://www.cancer.org/cancer/non-hodgkin-lymphoma/causes-risks-prevention/risk-factors.html Last accessed: December 2024.

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Lymphoma Action. Active monitoring (watch and wait). Available at: https://lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/active-monitoring-watch-and-wait Last accessed: December 2024.

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Cancer Research UK. Available at: https://www.cancerresearchuk.org/about-cancer/non-hodgkin-lymphoma/living-with/coping Last accessed: December 2024.

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Lymphoma Action.The emotional impact of living with lymphoma. Available at: https://lymphoma-action.org.uk/about-lymphoma-living-and-beyond-lymphoma/emotional-impact-living-lymphoma Last accessed: December 2024.

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