Chronic Lymphocytic Leukeamia (CLL)

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Support and caregivers

Caring for a loved one can be rewarding but it can also bring its own set of challenges and emotions. The person that you would usually rely on for emotional support may be the person who has been diagnosed, and you feel you cannot go to them. As a carer, it is important to know that you are not alone and that the feelings you have are shared by many others in a similar situation. Finding your own support network is just as important for you as for the person you are caring for. Speak with your doctor or cancer care practitioners for advice on local support groups near you.

This website is developed exclusively by a Johnson & Johnson company. Please note that the patient advocacy groups and external sources listed below are an additional and independent source of information you might find useful. These groups and sources were not involved in the creation of this website and do not endorse its content in any way.

Patient support groups

The European LeukaemiaNet (ELN)

The European Leukaemia Network is a non-profit organisation dedicated to improving the care of people with leukaemia across Europe.

Leukaemia Care

The Leukaemia Care online forum is a place where people can ask questions anonymously or join in discussions with other people in a similar situation.

For guidance on how you can best help, and important information on how to take care of yourself, download the ‘Guidance for carers’ booklet.

References

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International Myeloma Foundation. Concise review of the disease and treatment options. 2017 edition. Available at: https://imf-d8-prod.s3.us-west-1.wasabisys.com/resource/ConciseReview.pdf Last accessed: February 2025.

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Memorial Sloan Kettering Cancer Center. Multiple Myeloma Symptoms. https://www.mskcc.org/cancer-care/types/multiple-myeloma/multiple-myeloma-symptoms Last accessed: February 2025.

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Gavriatopoulou M, et al. Metabolic Disorders in Multiple Myeloma. Int J Mol Sci. 2021;22(21):11430.

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American Cancer Society. Multiple myeloma: causes, risk factors, and prevention. Available at: https://www.cancer.org/content/dam/CRC/PDF/Public/8739.00.pdf. Last accessed: February 2025.

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Myeloma Patients Europe. Multiple Myeloma – A Patients’ Guide. Available at: www.mpeurope.org/files/Patients-guide-mpe-web-version-V2.pdf. Last accessed: February 2025.

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International Myeloma Foundation. Understanding MGUS and Smoldering Multiple Myeloma, and Active Myeloma. Available at: https://www.myeloma.org/what-are-mgus-smm-mm Last accessed: February 2025.

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Moreau P, et al. Ann Oncol. 2017;28 (Suppl 4):iv52-iv61

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WebMD. Smoldering Multiple Myeloma. Available at: https://www.webmd.com/cancer/multiple-myeloma/smoldering-multiple-myeloma. Last accessed: February 2025.

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American Cancer Society. About multiple myeloma. Available at: https://www.cancer.org/cancer/types/multiple-myeloma/about/what-is-multiple-myeloma.html. Last accessed: February 2025.

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Hughes, D, Yong, K, Ramasamy, K et al. Diagnosis and management of smouldering myeloma: A British Society for Haematology Good Practice Paper. British Journal of Haematology. 2024: 1193-2016.

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NHS Inform. Multiple Myeloma – About multiple myeloma. Available at: https://www.nhsinform.scot/illnesses-and-conditions/cancer/cancer-types-in-adults/multiple-myeloma

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Vaxman I, Gatt ME. Smouldering multiple myeloma: To seek or not to seek? To treat or not to treat. That is the question. Br J Haematol. 2024; 204(4): 1141–1142.

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